@RareDiseaseDad and DadVocate are the monikers for Adam Johnson who is now a rare disease patient advocate who hosts a series on MitoAction’s Energy In Action podcast called Parents As Rare that features stories of others like him who are
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How My 100-Year-Old Best Friend Redefined My Life with Judy Gaman
While setting out to write a book about how to Age to Perfection, Award-Winning Author and Podcast Guest Judy Gaman met Lucille Fleming, an amazing woman who Judy noted redefined my life, perspective on aging, and concept of success. Lucille…
Self-Advocating for Career & Life Possibilities
As an able-bodied person, carrying your laptop into a meeting seems like a breeze. Or sitting down to work at a conference room table or your desk are things you may do several times a day. However, as a wheelchair…
Climate Change and Disaster Preparedness in the Disability Community
How might climate change affect your world? What is a disaster readiness plan and how do you create one? Host Annette Hines discusses these timely topics with her guest, Alex Ghenis who is the deputy director of Sustain Our Abilities…
Dig Deep: Finding Hope in Special Needs Parenting with Kelly Speck
A severely traumatic or unusual birth experience, weeks spent in the NICU, and harsh lectures from a neurologist about your child’s chances of survival or living a good life are common starting points of the parenting journey that unites many…
Autism and Family: Telling the Whole Story
How does your child’s diagnosis affect your family? Where do you find other parents or caregivers facing similar joys and challenges? Kate Swenson writes that autism “affects the whole entire family,” and notes that it was nearly impossible for her…
Depression and Stress in Teens: What to Look for and When to Seek Help
Annette Hines host of Parenting Impossible – The Special Needs Survival Podcast opens the episode remembering the legacy of Helen Keller who was born on June 27, 1880. She was the first deaf-blind person to earn a Bachelor of Arts…
Ninety-Day Goals and Tolerations
Annette Hines, host of Parenting Impossible – The Special Needs Survival Podcast hosts a minisode to address how to combat feelings of being unmotivated or uninterested in life. When you recognize that you’re a little off, it’s probably time to…
John Felageller Shares a Dad’s Perspective on Disability Parenting
Annette Hines, host of Parenting Impossible – The Special Needs Survival Podcast starts the podcast talking about her recent live video post in the Circle of Care Facebook private group open to anyone in the disability community in which…
Ryan Rydzewski, co-author of When You Wonder, You’re Learning: Mister Rogers’ Enduring Lessons for Raising Creative, Curious, Caring Kids
Annette Hines host of Parenting Impossible – The Special Needs Survival Podcast starts the podcast reflecting on the role of fathers in the disability community. With Father’s Day approaching, Annette Hines will interview three different guests who are fathers and…